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Juliette est une petite fille atteinte du syndrome de Rett, une maladie génétique qui affecte le développement du système nerveux. Pour améliorer son quotidien, ses parents doivent faire face à des dépenses importantes : véhicule adapté, fauteuil, déplacements, équipements électroniques… Malgré les aides qu’ils perçoivent, une grande partie des frais reste à leur charge. Pour y faire face, ils ont créé leur propre association, Le Journal de Juliette. Ils témoignent de leur réalité. #sinformersur
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